SANDI PARSONS - READER, WRITER, STORYTELLER
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I Take a Handful of Tablets Every Time I Eat

2/5/2022

1 Comment

 

​Day 2. Enzymes

A bowel full of Creon tablets
Photo Credit: Sandi Parsons
Enzymes & math

Currently, I take 105 Creon 10,000U per week —without counting snacks, and I excel at snacking. For every snack, you can add on a couple of extra tablets.
I’ve taken enzymes all my life, and without them, I can’t digest food. As a small child, we would sprinkle a horrid power onto my food.
​It tasted foul! 
After that came little round tablets, each enzyme came in a foil-wrapped packaging. It took longer to open them than it did to swallow them.
​
As a teenager, I used Cotazyme, which was in a capsule form and contains hundreds of beads, like Creon is today. I took 20 with a standard meal and 25 if I was eating fast food.

With the advancements in medical technology, the enzymes do their ‘thing’ better. Currently, I only need 10 Creon for each meal. 

Why people with CF need enzymes
For some people with CF, their pancreas has scarring. My pancreas tends to get blocked and unblocked regularly. Thick sticky mucous causes the blockages. In fact, thick sticky mucous is the cause of all the problems created by Cystic Fibrosis.
My on-again-off-again blockages mean that at the drop of a hat, my enzyme needs change. Which doesn’t bother me — I’m used to taking handfuls of tablets.
The transition period, however, can be an absolute bitch. I call it the Game of Creons. It even comes with its own throne. One minute you’re constipated, then the next, you have an exploding bottom.
Picture
31 Days of Cystic Fibrosis Bonus Fact
27 is my magic number. I don’t just take Creon. I have quite the cocktail of medication that I consume daily. 27 is the number of tablets I can swallow with one sip of water.
It’s one of my superpowers.


31 Days of Cystic Fibrosis Bonus Fact #2
Every so often, Apple kindly complies photos and highlights them - the one that leads with the above photo is called "Tasty Bites Over the Years"
* Post updated in 2024.

Next in the 31 Days of Cystic Fibrosis series — Physio, the Necessary Evil That Saw My Gran Accused of Child Abuse
As a child, physio was always percussion — where I would get tipped upside down, and a family member would clap their hands on my chest rapidly.
31 Days of Cystic Fibrosis is an awareness-raising campaign to coincide with
the national Cystic Fibrosis (CF) Awareness Month in Australia.
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​
If you’ve just joined the journey and want to start at the beginning, you’ll find the first post here: Your Daughter Has Cystic Fibrosis
Want to read more about Cystic Fibrosis?
See the tabs under Cystic Fibrosis, or view my Medium publication Speaking Chronically for more!

1 Comment
Terrebonne Gay Boy link
1/2/2025 01:47:21 pm

Great post thhank you

Reply



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    Written by 

    Sandi Parsons - Cystic Fibrosis Warrior.
    ​Defying statistics since 1972

© Sandi Parsons


  • About
  • Books & Writing
    • Pepsi the Problem Puppy
    • Salty
    • Freelance Writing
  • Cystic Fibrosis
    • 31 Days of Cystic Fibrosis
    • For 49 Years I've Had the Reaper Breathing Down the Back of My Neck
    • The Last Walk
  • Hire Me!
    • Author Presentations
    • Public Speaking
    • Unicorn History
    • Editing & Sensitivity Reading
  • Store
    • Freebies!
    • Books
    • Editing Services
    • Printables
    • Writing Prompts
  • Contact